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Posted by robin on February 14, 2003 at 15:04:57:
In Reply to: Neurofibromatosis?? posted by Shana on February 14, 2003 at 08:39:35:
: As you all know now, I have a six month old son. He is mixed... father is black and I am white. Since birth he has developed numberous birth mark type of spots all over his body... and dr's have shown concern about them but assumed it was problems with pigmentation. He went for his check up yesterday and we have been referred to a specialist. They are concerned he may have neurofibromatosis. I have been reading about this and I am scared to death... does anyone know anything about it or know someone who may have it? Thanks in advance... my nephew has been peged with the name he is getting checked every yr till puberty for it
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its growths on the ends of nerves.so far heis good..if they catch it early the can give meds to keep it at bay.thats the reason for getting tested so often..it usually now days doesnt get bad since it get cought early if they continue to get tsted...80 percent of the patience dont get it or, it stays dorment at least thats what his specialists say.....so we r hopeing,.i hope it the same for u.......asi said the testing is to catch it early thids way the give the meds to keep it at bay.